The Foundation’s National Volunteer Advocacy Committee provides guidance and support to further strengthen and enhance the ...

My evolving relationship with cystic fibrosis brings feelings of guilt and jealousy but also a deep sense of gratitude and understanding.

Our story begins in October 2023. As a well-seasoned mom, I gave birth to my third child and finally felt all the love, joy, and excitement to have my baby in my arms. What I didn’t know at the time ...

Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States — ...

Dear Chairman Beidle and Members of the Committee on Finance: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our support for SB 773, which would ...

Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we urge you to prioritize robust funding for the National Institutes of ...

Dear Chairman Pena-Melnyk and Members of the Committee on Health and Government Operations: On behalf of the more than 570 people living with cystic fibrosis in Maryland, we write to express our ...

Dear Chair Collins, Vice Chair Murray, Chair Cole, and Ranking Member DeLauro, On behalf of the undersigned organizations, we ask you to ensure robust appropriations for NIH in the remainder of fiscal ...

For years, my son grew up as a perfectly healthy kid, despite being diagnosed with CF-related metabolic syndrome. But when he suddenly developed pancreatitis, I had a hunch it was actually related to ...