Columnist Helen Baldwin recalls the major life changes that preceded her introduction to the SMA community with the birth of ...

Blood vessel damage in the spinal cord may play a role in nerve cell loss in spinal muscular atrophy, a new study suggests.

Columnist Connie Chandler enjoys volunteer work, but her physical limitations from SMA means she often needs a little help ...

A mouse study suggests SMA treatment may partly restore organ-specific redox imbalances linked to SMN protein deficiency.

Early treatment helps with swallowing and eating for SMA kids, but new research is needed on the effects of disease-modifying ...

Children with SMA often struggle to get a good night's sleep, and their caregivers also report feeling sleep-deprived, a new ...

Guest writer Ronna Johnson feels privileged to support her son, Brandon, in living his best life, pursuing his goals, and ...

Columnist Connie Chandler is inspired by the Olympic athletes, who invite people all over the world to dream that anything is possible.

Treatment with Evrysdi (risdiplam) may modestly improve arm function for adults with spinal muscular atrophy (SMA), a new study indicates.

The blood creatinine-to-cystatin-c ratio may be a biomarker of Spinraza treatment response in children with SMA, a study in ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.